Lots of activity

We have been receiving lots of registrations, please note we are 1/3 full, so if you would like to attend and sit with your friends get your registration in to guarantee your spot.

Also check out this video about ALS. Spread the word!!

http://www.youtube.com/watch?v=I3I_fjAQzCA

 

ALS in the Media

ALS will have a spotlight on it during this Superbowl. Very exciting to see this!

Registration is in full gear, thanks to all those who have already sent in their registrations to save their spots.

Enjoy the Superbowl with you family and friends.

Team Gleason and NFL

Steve Gleason and Team Gleason have been busy working with the NFL. They created this profound media clip that will be aired during the Super Bowl. No White Flags!!


http://fifthdown.blogs.nytimes.com/2013/01/28/in-starkest-terms-players-share-message-about-a-l-s/

Team Gleason is My Hero

If you have a few minutes please take the time to see this amazing man, Steve Gleason and the wonderful work Team Gleason is doing for all those families living and coping with ALS.

http://www.wwltv.com/news/health/Full-Speech-Gleason-announces-special-home-for-neuromuscular-disorder-patients-187897451.html

Football Superbowl fever!!

ALS in the news.

http://aol.sportingnews.com/nfl/story/2013-01-21/ravens-vs-patriots-oj-brigance-als-super-bowl-inspiration-ray-lewis-ed-reed

Spread the Word!!

Registration is open! Hope to see you in May at our ALS Charity Crop!

Press Release Details

Very disappointing news released today about a Phase 3 drug study for ALS.

Biogen Idec Reports Top-Line Results from Phase 3 Trial Investigating Dexpramipexole in People with Amyotrophic Lateral Sclerosis (ALS)

http://www.biogenidec.com/PRESS_RELEASE_DETAILS.aspx?ID=5981&ReqId=1770780

I hope there is success in a medicine which will allow people living with ALS a more comfortable life.